Showing posts with label anxiety. Show all posts
Showing posts with label anxiety. Show all posts

Wednesday, 28 January 2015

Moods

I know I am not unique in my love-hate relationship with Facebook. 

For all of the posts that irk me - and my, oh my,  does that local mommy fb group that I'm a part of make me want to FREQUENTLY reach through my screen and give some people a hard finger flick right in between the eyes - sometimes, there's a little hidden gem in there.  I think those little gems are what keep me (and most of us?) coming back for more. 

I thought this was a great article about how postpartum depression isn't what a lot of people think it is. And how it isn't called just PPD anymore, it's called PPD/perinatal mood and anxiety disorders.

http://smyrnaparent.com/when-postpartum-depression-isnt-depression/

It really made me reflect on my mood in a different way.  And see my irritability and mood swings more clearly.   Obviously, I'm not postpartum, but I think I'm something.  For years, I've known that something has been wrong with my moods.

It is something I went to see my doctor about a few years ago.  He had me fill out a couple surveys.  When I returned them to him, he told me that I had scored very high on the anxiety questionnaire.  At the time, it was a bit of a lightbulb moment for me, because I had thought that it was depression that was affecting my life the most, although I know they often go hand in hand.  My depression score wasn't much better.

He asked me to seek counselling before prescribing any medications to me.  I went to two sessions, felt a little better and then didn't go back basically because I was too cheap, and I always felt like my feelings were situational, and that meant that they could just *poof!* get better.   I was always focused on fixing what I thought was the root of my problem - infertility.

I was also anxious thinking about taking anything that could affect a healthy pregnancy, and my doctor's teeny comment about the small risks to a fetus was enough to make me think that taking a pill would not be a good idea, especially when we seemed to be facing such a steep uphill battle already in that department.

I was doing things that were thought to only have a little chance of increasing my chance of getting and staying pregnant.  I felt like I didn't want to add anything to the mountain.  I'm not saying this was a rational decision, but it's the one I made.

I told myself that things weren't that bad, and that if things got worse, then I would do something about it.  The problem was, that when things did get worse,  I wasn't able to ask for help.

For the most part, I could function, but certainly not thrive, with my anxiety, irritability and depression.  A few times every year, when something horrible happened in our reproductive lives, things would to grind to a halt for a few weeks.   I viewed this as situational depression, and that once I grieved, that I would be okay.

I didn't notice though, that slowly I stopped doing many of the things I loved.

Photography was one of those things.  A few years ago, I was taking classes, shooting regularly, and going out with groups of friends to take pictures.  I was taking pictures of my friends' young families and learning new ways of post processing.  

Now when I look back, I can see that when I hit a snag or a roadblock with my photography (and in other areas of my life), that it would stop me.  It didn't have to be a huge problem, just something that would frustrate me, and need a little persistence to get through, but I'd give up.  When I'd finally get around to shooting (or doing XYZ), all I could see were the many unresolved problems that I "couldn't" figure out.  It led me to be comfortable with being stagnant.  I'm embarrassed about that, and much of the other stuff I'm writing about here today.

I told myself, and I told D that that it was the hormonal roller coaster that made me this way.

Injecting maximum does of follistim one month, followed by a lupron shot the next.  I thought my symptoms were hormone based, and I think hubby told himself they were too.  He basically gave me a free pass, with a lot of empathy for several years.  God. I am lucky to have this man, and I feel badly that he has had to endure cohabiting with me at times.

I told myself that if we ever made it through to the other side, that these problems would melt away.  I think we both clinged to that hope.

To a certain degree, I was right!

Babykins coming into our lives has lifted such a weight off our shoulders.  He brings so much joy and we are so grateful for him every single day.  I still can't believe how lucky we are to call him our son.

And, without all of the hormonal manipulation, I definitely feel MUCH better.

The problem is, is that I still don't feel great how I think I should.  I'm realizing that there is still something wrong with my moods.

I try to pin point what it is caused by exactly, and I think it's a compound problem.  It's hard for me to sort out.  I believe that the major contributing factors are:

  • Sleep deprivation. 
  • Hormonal.  I still have premature ovarian failure, and my cycles are messed up.  When my period is approaching, I definitely feel more rage.   Hubby thinks my moods are only related to the 5 or so days before my period.  What he doesn't know is that I internalize many of my grumpy feelings before that time, and by the time I get to a few days before my period, that lots of times my emotions related to certain triggers are already at a boiling point. 
  • Learned behaviour and thought patterns.   I need to be more mindful of the negative thoughts that constantly swirl in my head. 
  • Caffeine. It is my comfort in a glass when my energy is low.  I notice I feel edgier when I drink it too often, and maybe at all. 
  • Vitamin deficiency.  I've been told again and again that my vitamin D, and sometimes my iron levels are low.  Confession: I haven't taken any vitamins since my last fertility cycle because I have a bit of a pill aversion.  It's time to tighten up my bootstraps on this one.  
  • Water intake - is not consistent.  Some days I barely drink any water. 
  • Refined carbs - are also my crutch and my comfort.  It's how I solve my problem when I'm feeling hangry. 
  • It's winter and we're cooped up!

I love my husband, and he doesn't deserve an irritable wife.  My son doesn't deserve that either.

So from today on, I'm going to be monitoring my moods via a mood tracker.  I'm just started my period, so I think it's a great time to start doing so.  I'm going to keep track of the things I mentioned above to see if I can pin point anything in particular.  Going back to my doctor is an option too.

The Hubbs, D-Man.

He's spent a lot of years propping me up, and getting me through infertility and loss.  I could not have made it through these past seven years with out him.  He has been my empathetic ear and my rock.   He functioned on many days that I didn't.  He kept a level head on many days that I didn't.  He worked hard through out it all to pay for our lifestyle and for the gagging amount we have spent on infertility treatments.

Now, that the baby is here, his anxiety has reached very high levels.  He worries immensely, especially about Babykins.

He thinks about things like one of us accidentally tripping down the stairs while holding the baby, and about SIDS a lot.  He thinks about the worst case scenario all.of.the.time.  He checks things that I do and it drives me crazy.  "Is he too hot?" "Is he too cold?", "Should he be sleeping with his face like that?", "The weather isn't great should you be driving with him?", "Let's not go anywhere, so people don't touch him and give him germs".  I feel like I worry about Babykins a fair bit, and that D's worries are over the top.

He has reminded me of his friend who died in high school.  He was an only child and D says that his parents never recovered.   He tells me that if something happened to Babykins that we wouldn't recover either.

He tells me that the worst case scenario has always happened to us (in the baby department) and so he's scared it's going to happen again.  The respiratory problems and hospitalization that Babykins has been though has only made these feelings so much more heightened.

D's anxiety and my irritability is a shitty combination to say the least.  I'm sure you can imagine.

He works from home, which is awesome in that he's able to be a very involved parent and spouse, but it also doesn't give us much time apart from each other either.    With the winter, and almost two months with a sick infant, (and with me fighting three colds since December), it's been a lot to handle.

We recently spent time with one of D's childhood friends who lives far away from us.  We only see him about once a year.   (Random side note: He's a chiropractor and did an adjustment on Babykins.  I never thought that would be something I would do, but it was honestly very harmless - the most aggressive thing that he did was hang the baby from his feet upside down to let the weight of his head adjust his spine.  He explained everything he was going to do very thoroughly before he did anything, and got our consent.   I'm not sure if it did much but it was very neat to watch the adjustment!).  Anyways, D said various things though out our visit with him that led him to say, "Holy cow! When did you start worrying so much? Where did D go?!?"  I told him I couldn't have agreed more.

D doesn't see his anxiety the same way I do.

My point is, I suppose that we are both still suffering a bit.   And I feel guilty about that.  We've been given everything we ever asked for now.  But, I also think we have allowed ourselves to suffer for much too long too.   We need to do something about it.  I'm going to start with myself.  I'm writing this here to hold myself accountable.



Monday, 11 August 2014

Stepping out of the darkness...together

....This post was from earlier in the summer.... I am just getting around to editing and publishing it now. 

The winter and spring were dark times.  I didn't realize it at the time, but there was a quiet undertone in my thoughts, where I blamed myself for what I was feeling.

I chose fertility over adoption, again.  Maybe it was the wrong choice. 

My body failed us, again.  

If I had made my life fuller, and crafted more meaning and purpose in other arenas of my life, maybe this loss wouldn't hurt so much. 

I shouldn't need so much support.  

Why me, why us, why our baby, AGAIN? 

Today, I realize it wasn't all my fault.  We made choices together with the best information we had at the time to get here.  There were a lot of compounding factors.  There was just so much to grieve.   I remind myself that my three pregnancies and four babies were (and are) a big deal.   That our infertility is a big deal.   That is why I was (and am) grieving.    

I want to write it out here so that I remember.  So, if I ever have to visit those depths again I can re-read this.   They are not excuses.  They were my reality.

Note to self:  You can't control how you feel.   It is ok to grieve, even if it takes a long time.  There were compound factors to my situation.  

There was a recipe to my grief:




Winter weather

+

The cumulative grief of infertility and loss


A lack of social support


Social isolation


Hormonal manipulation &  pregnancy/miscarriage hormonal factors

+

No positive distractions

=

Grief, Depression & Anxiety



We have been at the cottage since early May. We've made plans to return home, which have changed again and again. Now finally, we have arranged to travel back in the third week of August. I love it here- and already I feel sad about leaving. We have been away for much longer than planned originally and we need to check in at home. 

Taking a fertility break for this long was not what I originally wanted, but it is what I got. It has been so tremendously healing. Eating, drinking, and no pills. Ahhh. 

I/we needed this time and place to recharge so desparately. I am still fragile but at least I feel that I have time to glue the pieces back together.  

Sadly though, this summer, D has sunk farther into his depression.  His anxiety has also grown. 

After a big talk yesterday, I understand now that he needs more support from me.  I am all he has, his friends and family only talk about only "level 1" topics as we refer to it.  He needs more support. 

He's grieving heavily.  He is sad about turning 38. He is very sad about not having children.  About the big changes that have happened in his industry.  About his loss of spirituality, and about the loss of mine.   I think he may be sad about being away from home, and his friends too, but he insists he likes being where we are, but yes, he does miss 'his people' at home.  

His grief is expressed a lot different than my grief, and it is harder for me to recognize.  His grief is angrier.  It is moody.  It is grumpy.  It is more frustrated.  It is lonely.  It is less sexual.  It often seems more mad than sad.  It worries, a lot.  All of those symptoms are hidden in other places and situations, and not necessarily discussed within the context of infertility and loss.  

At times, even when I do recognize his grief,  I've been selfishly shielding myself.  I am embarrassed and ashamed to admit this.  However,  I have been treading water for so long myself, I was exhausted.  I finally felt like I could see the shore.  Getting back in the water with him is difficult. I feel like I barely escaped it the last time. 

After our chat, I know he needs me to swim beside him. To be his lifeguard.  So, I'll be jumping in more.  

I wish I could waive my magic wand and make things all better for him.   It's so hard to see him suffer. 








Monday, 28 April 2014

Houston: We have contact!

There was glorious progress.

Contact #1:

A text from one friend.  She was the one who called and left a message last week.  It said she was thinking of me, and asked if I had time for a chat?   I said I did, to call anytime and she called me within a few minutes.

Not going to lie, the conversation was a tad awkward.  But not dreadfully so.   There was no small talk.  The first thing she asked was how I was doing.  I replied, "kind of crappy".   She told me that she was so sorry, and said a few other things along those lines.

It felt awkward, so I asked her how she was doing?  She sounded sick and she told me that on Friday they had to put her mother-in-law in a retirement home somewhat suddenly because of her Alzheimer's.   She and her hubby have had a lot on their plate too.  I empathized with her about that.  It really must be hard for them, and I wanted to let her know that I know she's been stressed too.

In my typical style, I started to feel guilty.  They have been going through their own big stuff too.  I told this to D and his was response was "Ya, but it takes 5 seconds to send a text'.  Good point, I suppose.

I made a mental note to follow up with her in a week to see how MIL is adjusting and how hubby is doing.

She asked if I was sure I was feeling up to the weekend visit.  She said it was ok to reschedule.  I said I didn't know, that I would like to see everyone.  I would see how I was feeling in a couple of weeks.

At the end of the call, the conversation went back to talking a bit about infertility and adoption.   Honestly, after not sleeping last night I wasn't in my best form to have the conversation.  I felt a bit tired and lazy, and also like I wanted to give her the light version of everything.  No need to shock her when she was trying.

She told me to call her anytime I wanted to talk.  I told her that I had a hard time doing that, knowing of how busy her schedule was.  She offered a solution.  She said to text anytime, that her kids were at the age now where they will watch TV.  She said anytime I wanted there was a 58 minute movie that they loved, and she'd pop it in anytime and call me.   I thought it was very sweet of her to say that.

All in all, the call was somewhat uncomfortable, and felt a bit forced to me (because it was!).  I remind myself that part of this experience was about spreading the word, and giving people a glimpse of what I need.   I hope that this conversation really just set the stage for the future more than anything.

Contact #2:

The other friend texted to check in on me, the one whose mother was sick.   We chatted briefly about her mother via text.  It was good.  I wasn't mad at her because she called me a few times already.

Contact #3

She texted and said she was thinking of me everyday, and asked me how I was doing.  She offered to come down and visit me (we live 2 hours apart).  I texted back.  She didn't write back yet.  She's a bit sporadic with texting on a good day, so I'm not surprised.   I'm happy though that she reached out.

Contact #4

A bonus contact.  My youngest brother called.  I'm one of five siblings.  We haven't talked for more than a couple of minutes here and there in a couple of months.   Part of the way through the call I said, "Things have been pretty rough in ___(where we live)___.  Have you heard?"  He said that yes, our Mom told him.   Then, he actually said "cue inspirational phrase here".   Wow.  Just wow.  His response was so brutal, but I had to laugh at his honesty.  Then he said "Well, try to stay positive.  Everything happens for a reason".  I told him I used to believe that, that I don't anymore because thinking that someone was doing this to me for some purpose didn't make me feel any better.  He said sorry, then he changed the topic.

My brother has some learning to do in this department I'd say.  Actually, it made me feel bad for his long time girlfriend.  I hope that he is able to offer her more support when she needs it, than what he demonstrated here.

I took comfort in his effort to call more than his words.  He tried, and I appreciate that.

Contact #5

Holy cow, did the universe respond or what?  5 contacts!

My Dad called and offered again to come down for a visit.  He's offered this twice already, but I turned him down.  He lives a 5 hour drive away and honestly I just wanted to sit around and cry all day.  Not sit around with my Dad and think about how I wish I was alone and crying.

He had a little project that he wanted to do (it's a table that I need with some customization).  He found a table base and suggested that we go to Father-in-law's shop to build it.  My Dad's handy too.  It would be a project for the three of us.  He said he was bored and looking for something to do.  Really, I think it was a little of that, but that he's also worried about us.

I liked the idea of the project, and I relented.  He's coming Tuesday night.

Missing contact:

Friend who didn't even bother to text or do anything last week.  I found out that no one had been able to get ahold of her to tell her the news, but she found out Saturday.   As of today (Monday at noon), she had not sent a message or anything.  She's the one who I'm not close with and so I don't even care.  I would like to dis-invite her from the weekend (and perhaps the rest of my life) but I won't do that...today.    She's always been the one in the group who is not as connected, and always has been.  No tears shed over this one, but it has been noted.


Reminding me of the past:

For some reason all of this reminds me of an experience that I had in university.  I was seeing a guy who would treat me ok sometimes, and then not call for stretches of time.   I can't believe I ever put up with being treated this way, but I think I was a bit blinded by infatuation.  Actually, this happened twice now that I think of it.   At the time I was feeling like I really wanted a boyfriend, and truthfully I was kind of desperate.  There were no other boyfriend prospects on the horizon.  After some agonizing, thinking that maybe something's better than nothing? I dumped their asses.

You know what?  I thought I would feel sad that I was alone.  But, it felt amazing.  Freeing.  Empowering.   It was hard, but told myself that I mattered and deserved better and I did something about it.   This all feels strangely similar to me.  Except better.









Friday, 11 April 2014

When your worst nightmare becomes your reality, again, and again

I spent yesterday reading your comments in between sob-fests, pity parties, watching 80 mind numbing cooking shows and shovelling take out food down my throat.

Thank you doesn't even begin to touch on the gratefulness I feel for your generosity of heart. I showed D your comments, and he said, "Wow. Those are some really great people".  He's so right.  Thank you for your gentle words and helping me keep my head above water.

Later today, I hope to write about what happened during our ultrasound and after, but I need just a little more time to process it all.

Right now, I fear that the depressed/anxious girl that has been living comfortably in my brain for weeks (years?) has now received the fuel she needed to become a full blown, raging control freak. She's yelling "I told you so! This is never going to work, muhahahah! Nana-nana-nana!" At the top of her bitchy high pitched voice. 

She was right this time. She won, again. She went up against 6 MOTHER fucking years of research and treatments, too many doctor's appintments to count, enough money to buy a long row of new cars or feed the homeless in my city for a year.  And, now,  impressively a 21 year old's donor egg and one of the best fertility clinics in the USA.  She won.  I don't want to even fucking believe it. 

Even though I feared this happening from day one, I am somehow still in shock. 

I'm not sure how to continue now.  I always fought for my body, thinking that it was an embryo quality issue that we had before.  However, now something new has been added to the equation.  Now I add a beautiful hatching 5AA DE blast to the list of babies that has died in my uterus.  No, I don't know that it was chromosomally normal.  And maybe even if it was, it would have died.  I don't know what to think.

Right now I just feel stupid for having chased this dream for this long.  Maybe I should have seen the writing on the wall a long time ago.  Maybe I should have listened to that little voice in my head.

If there's one thing I've learned about grief and coping with loss, it's that today no decisions need to be made. Today is about eating, sleeping and just getting through the day.  

Why couldn't this have just worked for once?







Wednesday, 9 April 2014

Once an infertile, always an infertile? Med problems and 8 week symptoms

The past few days,  I have had a bunch of random thoughts swirling about my head... so out they come.

Once an infertile always an infertile? 

I found coming up with a name for this blog tricky.   Finding A Way Out Of IF seemed like a fit because it was what I was trying to do, on a couple of different levels.  At the time, my main goal in life was to get out of infertility.   As in have a baby or two, then tell infertility to f-off, close the door on it and never look back.   I also wanted to stop living in the teeter-totter of infertile life of 'what if' start living in the more now.

What occurs to me now, is that even if I'm lucky enough to end up with a real, live baby after all of this, I'm still going to be majorly infertile.  There won't be a way out of IF for us.  With our types of infertility (DOR & severe male factor), our diagnoses are not going to get better.  I am always going to be infertile.

Emotionally, I feel like I'm always going to be infertile too.  During a heart to heart with the woman who donated her embryos to us, I told her that a few years ago.  At that time, I was mourning that I would probably never go to a baby shower and feel happy, or be able to casually talk about pregnancy in a way that other fertiles do.  She had been through hell to get her family; 5 years of treatments, 7+ surgeries, 5 miscarriages, and ultimately had her children through adoption and surrogacy.  She told me that the burden would become lighter.  That she never thought it would either, but it happens, there will be days and weeks that pass that you don't think about it.

I hold on to the hope that I may get to that place that she describes.  Right now, I feel like the heartache of the last 6 years isn't something that is going to leave me easily.  While I hope to always sensitive to other's people's feelings, and remember to count my blessings, I could really do without the daily reminders of our infertility.

I can see a small fraction of this burden lifting lately, and it's been giving me hope.  I can look at baby things and pregnant mothers, and hear stories about friend's children without wanting to burst into tears.  It's a start, and I'm grateful for this little bit of relief.

Controlling how I think of the 'what ifs' has not been my strong suit.   I'm a worrier, and so is hubby.  And right now, even as we are letting ourselves imagine the possibility that we're pregnant, that we could be on our way to a real live baby, we're caught deeply again in this trap.  I need to do a lot more work on this one.

I've been hung up on thinking about the what ifs of this pregnancy and the possibility of miscarriage.  How would we handle it...again?  I've been trying not to let myself slip into the what ifs of still birth and infant loss, but with the loss of our friend's child that sneaks into my mind too.   I'm ready for this part of the infertility burden to lighten too.

[By the way - Thank you very much by the way for the resource suggestions for my grieving friend.  I've passed some websites etc. on to them.  I'm hoping that they will be a little help to them during this difficult time.]

Ultrasound anxiety

Tomorrow, I'm having another ultrasound.   It will be at my satellite clinic.  My anxiety is definitely rising thinking about this appointment, but I'm hoping it will all go smoothly.   Another positive result will be a huge step for us.

Rolling around in the back of my mind however, is something I remembered that the ultrasound tech said last week.  She told me the embryo was measuring 5 weeks -something.  I didn't think much of it because a) There was a lot going on and I was trying to keep from fully losing my composure and b) I thought it was maybe because of the the 2 weeks that get added onto gestation from the beginning of the cycle.  (It's still weird to me to consider someone 8 weeks pregnant when it's only been six weeks since the embryo was made.   But, I digress).

When I visited with Dr. Highrisk, after the ultrasound, he reviewed the notes, the day of our transfer and we told him it was a 5 day old embryo.   He said everything looked good, and on schedule.  That the amount of amniotic fluid looked good.  What he said put my mind at ease, that day.  However recently, my nurse said she was confused by what she had been sent by the doctor's office.  Why she didn't tell me this right away, I don't know?!? But she said that the measurements seemed weird to her (my words, not hers), and she reminded me to tell them the day of the embryo transfer and that it was a day 5 embryo, (which I had done) that otherwise the dating would be way off.

Calming my mind a little bit on the subject, is the fact that the baby would have been slightly bigger than a grain of rice at that ultrasound.  And that the ultrasound machine being used was ancient.    This is also why tomorrow's ultrasound will bring clarity.  Hopefully it will calm this infertile brain just a little more.

Med problems

Something else also is annoying me.  While trying to be on top of things, I emailed my nurse and I told her I needed to order more meds.  I sent her a list of what I had left.  Because of the weaning process I am not sure of how much more I will need.  I don't know the plan yet, despite asking for more information twice.  She answers me, but not in the detail that I would like.  Her response to me was to wait until the next ultrasound and we would go from there.

My anxious brain says; "Why? Because there's something more seriously wrong with the measurements from my last ultrasound and you aren't telling me because you don't want me to worry?  Too late.  Is it because you don't want me to waste money on more meds?  Or are you going to wean me that quickly that I don't need hardly any more? I sure hope not.  Sh*t".  Then it says, "You'd be able to use those meds anyways for your next transfer if this doesn't work out, just order them" and "Sometimes I hate being in my own brain".

I examined my stock of meds, in more detail and I believe that the CCRM nurse messed up.   This is because I think she was not considering that I can not just go get more meds at the drop of a hat.  I use an online pharmacy and get the meds delivered to my clinic (it's a long story, but I can't easily get them delivered to my home).  Given that it takes the meds two days to ship and then the clinic would be closed for the weekend,  I would be out of one med by mid-Sunday if my doses stayed the same.  I know my meds aren't likely going to stay the same, but I have no idea of how much they are going to change either.  I don't like cutting things that close.   Anxiety girl does not need any more reasons to be anxious than what she already has.

To fix the problem, I emailed my satellite nurse and asked her if she had any samples that I could borrow or have from her supply that I could pick up tomorrow? I could replace them from my next order if needed.   She thankfully responded quickly that she'll give me a box.  Ah.  Relief.

Talking about pregnancy

Finally, I do feel some hesitation about writing here about any pregnancy related updates despite how supportive you have all been.  I know you are all adults who can control what you consume.  I want those of you who are struggling to get and stay pregnant to know that I think of you often, and especially as I write updates about being pregnant.

I want to remember this pregnancy and to continue to be real about what I'm feeling in my little corner of the internet.  So, I'm going to continue to write about what's on my mind.  I hope that you find the strength to look away if you're not in a good place to read about it.  I will try to give my posts titles that will help you to decide to read or not.

I guess that is my disclaimer for the future.  I suppose I'm trying to give myself permission to continue to write things here and not feel guilty about it.

Here's how I feel today, at 8 weeks, 2 days pregnant.

  • Anxious brain.  Check, check, and check. 
  • Fatigue, check. But less so. When it hits, it comes on strong.  I feel like I could take a nap on the curb at the grocery store if I had a pillow and the urge hit me. 
  • My breasts are slightly tender, but nothing major. 
  • I am noticing a correlation between when I would normally start to feel hungry and when I start to feel repulsed by food.   When this happens, if I eat something right away it usually makes the feeling pass.  Today I discovered that a sucking on a hard candy helps. I'm going to be getting a stash of candies.  I'm thankful I haven't barfed at all.     
  • Normally, I love fresh foods and spending time in the kitchen.  I usually prefer the taste of less processed foods, and I enjoy putting the effort to prepare them.  It is strange to me that my appetite is way down and fresh foods are sometimes tasting rotten to me.  It's weird, even the freshest fruit or veggies can have an off flavour to me.  I think this is why I'm craving more processed foods.  They always taste the same.  They don't ever taste rotten.  It's not exactly how I hoped to eat if I was pregnant.  At least my morning smoothie is still going down, that I make with with spinach, frozen fruit and greek yogurt. 
  • I think I generally look the same, and I weigh the same.  Wearing pants that are tighter around my waist bothers me more than it ever did, but I don't think it's because my stomach has grown.  It's more like a sensitivity.   Yoga pants, tights and long tops have been my friend all winter and will continue to be. 


Thursday, 3 April 2014

First ultrasound, 7 weeks, 3 days

I had the ultrasound done at a hospital, where Dr. Highrisk is located.   I was worried about the technician not telling us right away what she saw.  However, when I was called back, we immediately had new problem.  They wouldn't let D come with me.  I practically begged for them to let him come with me, saying that we'd had 6 years of infertility hell and losses and I needed him there.  After asking the two different people that were helping me, both told me no, that it was "hospital policy".  I hate when people say "it's our policy".  When I was in the financial industry, I was trained that saying that to a client without further explanation equated giving someone the finger.  Surely this was a reason to make an exception? Unfortunately, they didn't think so.

So instead, I braced myself to be alone.

Right then, I'd wished I'd just went to our satellite clinic.  That would have never happened.

D said later that it felt like an eternity in the waiting room.  He said all he could think about was what he would say to me if there was no heartbeat.

When the nurse left me to get ready for the ultrasound, I decided I would try to help myself by slightly tilting her screen towards me, allowing me to see if I laid a little lower on the table.

As I was waiting, I thought to myself, "if there was ever a time for me to have a panic attack, this would be it".  My anxiety was through the roof.

The first thing she did when she came on was move the entire machine forward, so she could work, essentially making the screen completely out of my view.

I decided I would stare intently at her face.  I wanted to see if her expression would give anything away.   It didn't.  Then, she broke her silence and smiled and said that she saw the flicker of the heart, and then turned the screen towards me.  I'm not a public cryer, but tears started to flow down the sides of my cheeks.

Relief.

There was a heartbeat!!!

90 BPM and the baby and sac measured normally.  I can't remember what the measurements were because I was in shock, crying and trying not to break into a complete hysteria.

She asked me what Daddy's name was and she said she would go get him.  She said Daddy! My heart melted a little more and more tears came.

When she called for him in the waiting room, he said that he thought it was bad news and that I was a hysterical mess and they needed him to calm me down.

I knew he would think it was bad news, so the first thing I said to him was "It's ok.  There's a heartbeat." And then she showed him too.

At first I was worried about the fuzziness of the blob, but then I realized that the ultrasound machine they were using was not as advanced as I'm what I am used to.  The image was much less clear than our satellite clinic's, and way less clear than CCRM's.

After, we had a regroup with the doctor.  He was certainly not Mr. Personality.  I'm not sure what to make of him.  He didn't ask for a history, more than what the nurse took earlier.  He didn't have much to say, he just answered our questions.  When he answered us, he mostly just stared down at the papers in front of him.

When I asked him about weaning off my Lovenox and Aspirin, he didn't really have an opinion.  I was surprised.   He said there are no known risks to the baby and that it probably wouldn't hurt me to stay on it.  I feel that I am only taking it because of a) my sister's stroke and b) because I'm on tons of hormones.   Once I am weaned off the hormones, I may decide to stop taking it.   He says there's no weaning, that I can just stop it cold turkey if I want to.

He said he usually only sees people after four weeks when they are this early, but he kindly offered that if we wanted to come in more often, and it would help us be less anxious that he would see us in two weeks instead.  He said he would do the ultrasound himself.  We jumped on that opportunity.  Four weeks would seem like an eternity.

We're just letting this all sink in now.  This is new territory for us.  We've never been here before.  Never had a heartbeat.  We're feeling so very grateful and relieved.  This might really be it.

Thursday, 27 March 2014

6 weeks 3 days

Today is 6 weeks and 3 days.

My symptoms are:

  • Extreme tiredness/laziness.  As in, I massively don't care if I get anything done, and I would have two naps a day if I could. 
  • Slightly rounder, heavier feeling and slightly tender boobs.  
  • The twinges/cramps in my uterus stopped a week or so ago.  They freaked me out when they were here, now they are freaking me out that they are not. 
  • I have a very specific opinion about what I want to eat, and what I do not.  My appetite is down and I am craving bland, unhealthy carbs like saltine crackers, white bread and junk food.  I'm feeling guilty about not scarfing down heaps of dark green veggies and other healthy foods right now.

Our ultrasound is scheduled for April the 3rd with Dr. Highrisk.  CCRM says they don't need my progesterone & estrogen levels checked again until that day (gasp!).   Hubby and I decided not to go to our satellite clinic for an earlier appointment (it would have been March 31st at the earliest because of D's travel).  We've decided that we don't want to know the bad news (if there is some) any sooner.

I keep reminding myself that the doctor said that with donor egg there was only a 5% miscarriage rate.  Even with my history of miscarriages, they are still sticking with this number because of the supposedly poor embryo quality we transferred in the past.   Deep down though,  I feel like this number is too low.  I mean, don't get me wrong.  Who wouldn't want to hear 5%?!! It's fantastic! But in my messed up head, that number feels like it should be 40-50%.  At least.

I'd like to sit back and relax.  But I can't.  Anxiety's my middle name these days.   I am driving myself nuts.

Do any of you have tips on how to chill out my overactive infertile brain?




Friday, 21 March 2014

4573

4573 was today's beta, drawn at 9:00am.

My last beta, drawn two days ago at 11:00am was 2915.

The doubling rate is 71 hours.  Here's what the count down to pregnancy calculator says (Thanks Just T for the calculator).

Between 1200 to 6000 mIU/ml72-96 hours
1-2 Months5,000 - 200,000 mIU/ml

So, it's good news (I'm ignoring that 5000 thing)! 

I think that it's only this doctor's preference to see his patients when their HCG is above 5000. I don't think that it is a standard for care, just how his office operates.  

Even though I didn't meet his standard, Dr. Highrisk booked me to see him for an ultrasound on April 3rd.  It's a week after CCRM suggests that I can to go (March 27th).  D's away for a business trip on the 26th to 28th and then it's the weekend so I wouldn't be able to have an ultrasound until March 31st.  

So, I very well may make a trip to my satellite clinic and get it done on the 31st.  While I'm trying to wean myself off of my satellite clinic and get things done closer to home, I'm not sure if I'll be able to do it.  We'll see how my mental health is by then.   

Although I do like the idea of the results of the ultrasound being more concrete by waiting later.  None of that wait and see if something develops in those empty sacs, like we did with the twins, by having a really early ultrasound.  


My aunt (the one with the great reaction) and cousin are coming to visit this weekend.  It was a last minute adventure.  I'm glad they are coming.  It will be a nice distraction and nice to catch up with them. 

Have a good weekend. 


Thursday, 20 March 2014

Doctor hunting

CCRM asked for me to find an OB, and have my first ultrasound with them after March 27th.

Some people, fertiles and infertles  have everything mapped out about their pregnancies and babies before they arrive.  We could never bring ourselves to do this.  It wasn't something that brought us hope, but rather highlighted our infertility.

So, even when CCRM suggested I look for an OBGYN when we started our last cycle, I didn't.  I figured worst case scenario, that I could go to my last OBGYN, even though I haven't been there since I was 28 years old.

I remember my last visit to that doctor vividly.  He told me that my FSH test was normal (later I learned it was meaningless because I wasn't instructed to have it on day 3).  He explained D's sperm analysis, and in a low, hushed tone, mentioned the word "STERILE" and wrote it down on the page in caps.  I don't feel like revisiting those memories any more than the million times I've already have.   However, I did daydream about telling him that after 6 years, since I last saw him, guess what? This is a DE baby with D's sperm!

I asked my friend, a local maternity ward nurse, who she would recommend?  She told me that she wouldn't choose my last OB.   She instead suggested two others.  One was female, the other was male.  Recommendations being equal, I decided to go for the female.

I needed a referral from my family doctor to see the new OB.  His secretary told me that I'd need to come in for an appointment to get a referral.  I suggested that he might make an exception for me, explained a little bit of the situation and she said he'd call me back after reviewing.   Later that day, he called to offer his congratulations and we had a discussion about why I was looking to go to that doctor in particular.

He suggested that I go to the local high risk OB instead.  This surprised me.  I think the blood thinners I'm on and my family history of stroke make him nervous.  It felt a little like over-kill to me, but I figured I would go with it.  I thought, a more highly trained doctor isn't be a bad thing, right?   I figured if Dr. Highrisk didn't want me as a patient, that I could get him to refer me to the other less specialized female doctor that I wanted.

Dr. Highrisk is the only one of his kind in the city I live in.  He's a busy guy.  His receptionist is a busy gal.  And from what I can gather, they don't answer the phone very often.  When you get voicemail, it instructs you to not leave more than one message a day.  Every day that was ticking by, waiting for my call back, was stressing me out more, knowing that my ultrasound appointment time was getting farther and farther out in the future.

Wondering if there is a heartbeat, or anything going on in that ute of mine is driving me crazy.   Over and over I can't help but having flashes of when we had the twins, all of the excitement and then things crashing down,  when we realized we were staring at two very empty sacs.   This week, D called that that experience "the worst horror of his life".  In part because of the situation I'm sure, and in part because of how badly I crumbled after.

I wondering how this ultrasound is going to be? What kind of day are we going to have that day?  With only one embie in there, I'm reminded that there's one shot, once chance at a heart beat.  Knowing that when we get our ultrasound that we'll be 7 weeks along and it will not be too early to see the heart beat if there is one.

I tell myself, as some others in my life do "You got what you wanted, a BFP! This is real! Now be happy! Be excited!  Enjoy the moment!" But that's just not how I'm feeling.  I can't decide if it is infertility that has done this to me, or is it my now my personality after being in the trenches for so long? I never used to be a negative Nelly.  But I didn't know just how ugly the world could get then either.  It frustrates me and saddens me deeply.

Anyways, back to the doctor stuff.  Yesterday, after talking it over with D, I decided to physically go to Dr. Highrisk's office at the hospital.  I was going to say that I was in the area, and that I just wanted to check in...blah, blah, blah.   If I needed to encourage the secretary to give me an earlier ultrasound appointment than what she first offered, I planned what I would say.  Trying to find the right words for a likely desensitized secretary to feel empathy towards us could be difficult.  I settled on something simple.  "We've had six years of infertility and early losses, is there any way he could squeeze us in sooner?".  I hoped it would do the trick.

When I got there, the front desk of the hospital didn't want to let me in without an appointment.  This was probably heightened because the hospital is under an influenza advisory.   I told the receptionist that it was complicated, that I had a referral to be there, but I couldn't get in touch with them.  They let me in.

When I made it to the doctor's office, I breathed a huge sigh of relief.  The receptionist was as sweet as can be.  Her name is Joy.  She was one of those people whose name matched her personality so well.  She was tremendously helpful.  She said she remembered my name, but couldn't find my referral in her big stack of papers.  After searching for a few minutes while apologizing, she found it.  It was missing information, so she had set it aside.  It turned out to be information that would not have been known by my family doctor, and would have taken some time for them to complete.  I was able to provide the information, and fill in some of the blanks.  Phew! for this reason alone, I was glad I went in.

After consulting with the doctor briefly, Joy said he wanted to draw a beta and he could meet with me that day, if I could wait.

So, I had my beta drawn.   I later learned that Joy wanted me to see the doctor so he could prescribe some progesterone support, because of my early losses.  I told her that I was on hormones, that I was being monitored.  We decided that it would be best for the doctor to see the results of the beta (she told me they wanted it over 5000), and then go from there.   She would call me with the next steps.

Once at home, D and I did some figuring on the beta.  I've been trying not to stress about the beta. CCRM has only checked my beta twice.  When I asked my nurse why, and she said that unless it's being done every 48 hours, that it doesn't show anything meaningful.  That it doesn't show the health of a pregnancy.  My local clinic checked betas much more often.  I liked that better.

It didn't seem like 5000 would be possible with the numbers that I've had, even with some generous math.   I wondered if 5000 was some important threshold to be at when you're 5 weeks along.  Was it some deal breaker kind of number?  I've never researched these things very much.  With the embryo donor twins, my betas were sky high.  When I miscarried the embryo from our genetic material, the numbers were strikingly low.

Joy called me later that day, and asked me to come in again on Friday for blood work?  She said my beta was around 2900, and the doctor wouldn't schedule an ultrasound until it reached 5000.

We had a little sigh of relief that something is still going on in there.

Friday's beta will be another piece of the puzzle.  Maybe it will put us at ease, just a little more?

I wish I could just pack up my anxiety away for a little while....okay, forever! Scram, Anxiety! Don't come back! And take your stupid friend Depression with you!

I dream of the day where we see a little heart beat flickering on the monitor.   To see what we've never seen before, and maybe to feel a way that we haven't felt in a long way too.


Monday, 4 March 2013

Testosterone freaking me out



We had just come from dinner at a friend's house on Saturday night.  She's a home gourmet and a super great cook and baker.  They are very health conscious.  They eat very healthy meals throughout the week and on the weekend they cheat.   Over dinner we had a lot of conversation about GMO foods, organics, juicing, and hormone free meat.   She made us a super yummy meal.  A shrimp dip appetizer, homemade italian wedding soup, salad, beer braised short ribs and sweet potato mash.  For dessert we had a pumpkin and cheese cake tart.  Yummy, yum, yum.  We talk photography and lots of other things, while our hubbies talk business.  We're so lucky to have them as friends.

Thinking about the toxins in our foods freaks me out.  But up until this point, I've taken the bury my head in the sand approach.  I don't think of it often and I've been too cheap to actually buy organic food.  The grocery stores where we live don't have a lot of organic options, which kind of stinks.

We share something else in common with our friends.  They also have fertility issues.  After failed ART attempts, they have been in the process of getting their home study completed for domestic adoption.  (Although side note: I don't know if they are really ready for adoption because they have been working on their home study for well over a year and still don't have it finalized.) She told me she thought there was still a chance for them to get pregnant naturally.  She turned 40 this year and they have male and female factor infertility.

We had a really nice evening with them, and then returned home.  It was my first night to begin the testosterone patches.  When I talked to the pharmacist earlier in the day, she told me she had never seen this prescribed to a woman before, or for female infertility.  She gave me the hand out that came with the patches.  She couldn't really tell me where to put the patches or much else about using it.   So, when I got home from dinner, I read the information sheet on the testosterone patches.  Nothing was earth shattering.  Except that none of it was written for a female, and it said that females aren't supposed to take it, or handle it, duh.

I had not researched anything about females taking testosterone for infertility.  I had not read any studies.   I had not  even typed the words "testosterone and female infertility" into google.  This is so not me.

I think I was blocking out everything infertility out for the past few weeks.  (Hence the lack of posting here).  This approach was working.  Until it didn't.  At midnight, after I slapped on the patch, laying in bed I started to tear up (and get super bitchy).  I am sick of taking all of these drugs.  I am sick of the side effects.  I felt overwhelmed.

I thought about our friends.  They are doing everything they can to be healthy and avoid toxins and hormones that are in minuscule amounts in their foods.  I, on the other hand do none of this, and not only that, but I purposefully and willingly expose myself to all kinds of drugs.

D told me that I shouldn't take it if I don't want to.  That we could switch back to the DHEA.  I decided to take it for the night and do the research in the morning.  But D got out of bed and did some quick research.  It seems it is not completely uncommon.  There is supportive research.  It  put my mind at ease (somewhat).

I keep telling myself that we are nearing the end of all of this.  This is it.  No more drugs soon.  I think.


Update: I found this article which summarizes the benefits of the testosterone/androgen therapy which I thought was helpful.  It's not a journal but it summarizes journal findings. It totally reduced my anxiety.

http://www.infertilitysolutions.com/AndrogensForInfertility.html

Friday, 1 March 2013

A mismash of updates

I healed really well from the surgery.  I think I healed even faster than normal.  Although I don't know if I can truly say that because I've never had a surgery with an incision on my skin before (they've been vaginal).

My incisions look like brand new skin.  I'm happy that I healed well and there was no infection.  I have been wondering if the heavy Ubiquinol (the active form of CoQ10) had something to do with this.  At Christmas time, I cut off the very tip of my finger with a knife and it also healed really fast. I had new pink skin at the end of my finger within 3-4 days.

The only side effect from the surgery was that I was having a lot of dark brown spotting.  I expected this, but after 7 days it wasn't decreasing.  I called the nurse to check.  I told her I wasn't sure if this was my period even though it was only cycle day 18.  I was confused by my body. She was very reassuring and said it was normal to have this for 7-10 days.

The very next day I got the answer to my question.  I got my period.  It's now here with a vengeance. I hate-hate-hate maxi pads and that's all they want me to use for a month.  I'll be glad when it is over.

I'll also be glad when it's over because I will be able to have sex again.  It's been years.  Or maybe it just feels like years.  I guess really it's been about 3 weeks.

The good news is that I have started my priming protocol (which I described in the comments section of my last post if you are interested).

A couple of days ago, booked my acupuncture appointments.  I can't remember if I talked about it here, but I decided to take a hiatus from them until I got closer to the embryo transfer.   I actually liked going, but I pay out of pocket for the appointments and going twice a week was $120.  I felt like it was too expensive to continue.

 After I booked my appointments, I realized that I  had completely gotten ahead of myself.  I am only going to start this before the embryo transfer to increase uterine blood flow. I felt really embarassed calling the receptionist back and cancelling all of my appointments.  I was honest with her about what happened.  I beat myself up a bit over it though.  It was a really dumb thing to do.  I know it's also dumb to beat yourself up over a little mistake, but I couldn't seem to help it.   This combined with some other stressors yesterday made me quite anxious.

Six months ago I wouldn't have been able to say what "anxious" felt like.  I didn't think I had anxiety until I filled in a survey in my family doctor's office.  Ding, ding! I won the prize with a nice high score in the anxiety department.  I thought I was going to be high in the depression category (it wasn't great either).  That led me to do some reading and also some self analysis.  I realized how anxious I really was feeling a lot of the time.  I think the stress of infertility has magnified my feelings of anxiety.


Friday, 8 February 2013

An IF side effect




I have many emotional IF side effects.  Extra anxiety, check. A little depressed, check.  Mood swings, check and check.  And the list goes on.

One of the more strange ones is that I tend to think that everyone who has even a hint IF must have severe infertility.  I jump right to the worst case prognosis.   It doesn't matter if the person only has an increased risk for IF.  If they haven't conceived in 6 months I start feeling panicky for them.  Even if they aren't trying I worry.  I don't always vocalize (or type) these concerns but I'm sure that it seeps out from time to time.

In other parts of my life I try to be more positive. Well, I'm being brutally honest at least I do outwardly.  But in this, I don't do well.  I feel like it's going to be hard for them.  I feel like they all need to get to a top specialist and start taking drugs and supplements - and fast.  That they need to read every book under the sun and learn every little thing about their condition.  Even if they don't have a condition.  Even when the condition they do have is easily treated.

I should know by now, that things just work out for some people.  Some of them have take a little Clomid and got knocked up.  Some of them don't take Clomid and get knocked up.   But the rational part of my brain disappears and goes into overdrive when I hear someone has infertility.

I have to actively tell myself when I learn of another person's IF to relax! Take a deep breath and calm down! I try to tell myself that just because it has been like this for us for us, doesn't mean it's going to be like that for them.

Do any of you do this too?


Friday, 5 October 2012

5 years



Five years is what I'm thinking about today.  Five years of dealing with IF has changed me, my friendships and my marriage.

Some good things have happened in my marriage because of IF.  There's no doubt.  D and I have grown stronger, learned a lot more about each other and what it means to support each other through something really hard.  We have dealt with the repeated loss and grief associated with infertility and we're still standing...together.   It has been difficult, and there have been fights and silence too.  But I think we are much stronger together because of IF.

It's sad to me that many mornings, D asks me how I'm feeling right away.  He can see my mood before I've even had a chance to really notice it.  He knows that some days I wake up in a cloak of sadness or anxiety.  Nothing may have changed from the day before, but somedays this burden feels heavier.  I'm sad that D has to see me like this and sad that I have to feel like this.

In my friendships, I've learned to be more comfortable around someone else's grief.  I've learned to not judge another's choices when they are grieving or in difficult situations.  Because, honestly you don't know how you'll react until you get there.  It has also made me more guarded in my friendships.  I no longer am as easy going about what I do and when I do it.  I'm cautious now, thinking about things like what fertility related news I may have just received, and whether I'll want to go to that gathering with a million kids.  I like to plan my "baby hangovers", (the fall out I feel after spending time with beautiful families) carefully.

Five years in, I not only think of the changes in my relationships.  I think about how IF has affected me.  I used to think that "everything happens for a reason", now I simply don't.   I think things are random and unexplainable.  I don't think God controls everything, and this is scary and relieving all at the same time.   IF has robbed me of feeling hope the way I used to.  It's robbed me of feeling like you just have to work hard enough to get what you want.  








Thursday, 4 October 2012

Letting it all hang out




I’ve been thinking of starting a blog for a couple of years.  However, doubts filled my mind:
Would it be helpful for me or anyone else?
Would it be interesting enough or be too negative? 
What if someone I know stumbled across my little corner of the internet, where I post my deepest fears and my uncensored ramblings about my life?
What do have to say that hasn’t already been said already?

I still have all of these doubts.  However, what changed is that I’m feeling like I could use a little (ok, a lot!) more sanity in my life. And I think writing will help me get closer to that.  I need this little space more than ever.

So, here I go.   I’m doing this for me, in spite of all my doubts. 

I’m not sure where to start? So much has happened in the past five years since we started trying to conceive.  For now, I think I’ll just start with yesterday.

Yesterday I finished putting together our medical records for our telephone consultation with CCRM.   I called the nurse at CCRM to see if they would like the information in any particular order?  She said no, that they would be organizing it themselves anyways.

Because we’ve been the patients of three other clinics now, not including the many specialists that my hubby has seen over the years, things have gotten really complicated.  Complicated as in adopting 8 donor embryos from two different couples, back to IVF with our own gametes, a couple of miscarriages and a clotting disorder.  I wanted to give the doctor and nurses the clearest snapshot of where we’ve been so they can give us the best advice on how to move forward.   Right now we’re all in.  I think this will be it for us.  CCRM represents our last ditch effort to become parents through fertility treatments.  They are the big guns, and we’re bringing them out.

After getting copies of all of our records, I consolidated them into a binder.  I made a summary page highlighting the information that I thought was especially important, and referenced the page number that it could be found on.   All in all, there were 236 pages of medical information about us.    It was an exhausting process to put it all together in some logical order. 

Seeing all of the information in black and white, in a 3” blue binder brought forward a lot of feelings.  It clarified a lot of things for me (more to come at another time on this).  It also created a lot of questions, and allowed me to see where things could have been done differently.   It gave me hope that maybe, just maybe, this new clinic might be able to see something different, or be able to help us get closer to our dream of becoming parents. 

Some of the pages made my eyes well up with tears.  Others made me feel full fledged burning anger.    All 236 pages left me in disbelief that this is our life, and that 5 years later, we are still searching for our way out of this IF hell hole.

Some of the pages that were the hardest to read:
·      The very first semen analysis (S/A) that DH did.  Not anticipating (as in, it never even crossed my mind that we could have bad news), I went to my OBGYN alone.  A few minutes later, I was sitting in my car with a piece of paper, a bunch of numbers I didn’t understand with the word “STERILE” written on it in.  Seeing that piece of paper reminds me of bawling hysterically in my car wondering how I was ever going to give D the news. 
·      The copy of the first ever FSH hormone test that I had.  It left me feeling confident in my reproductive abilities.  Ha!  One year later, I learned that my ovaries looked like they were 45 years old instead of the 28 years old that I was at the time.
·      The ultrasound pictures of the twins that we lost earlier this year at 8 weeks, and the blood test confirming another pregnancy loss at 5 weeks.

I want to find away out of this IF land.   That’s what this is all about.